Four-year-old Nora has cerebral palsy and epilepsy and relies on
imported Epilim and Keppra daily to stop her suffering seizures.
Elgarf wants to stock up on the drugs in case supplies are hit but
she can't because they are only available on a monthly prescription.
For Nora, "this could be matter of life and death," Elgarf told
Reuters at her home in southwest London.
"It could mean being sent off in an ambulance to hospital with a
massive seizure that lasts five minutes plus. She cannot miss those
medicines. There's no ifs and buts about it and we cannot use
alternatives either."
With the clock ticking, British lawmakers are still struggling to
agree a withdrawal treaty with the European Union, having
comprehensively rejected Prime Minister Theresa May's agreement last
month.
The default position means Britain will leave on March 29 without a
deal in place unless something can be agreed beforehand. That has
led to fears that supply chains will be severely disrupted leading
to shortages of food and medicines.
According to the British government, about three-quarters of
medicines used by the state-run National Health Service (NHS) come
via the EU. May, a Type 1 diabetic, has said she herself relies on
insulin produced in another EU country.
WORLD'S BIGGEST FRIDGE BUYER
Last August, Health Secretary Matt Hancock outlined plans to ensure
Britain had an extra six weeks of supplies in the event of a no-deal
Brexit.
In January, he said Britain had bought 5,000 fridges to hold
medicines, making him the biggest buyer of fridges in the world, and
secured warehouse space.
"Making sure patients continue to have access to the medicines they
need is paramount...," said health minister responsible for Brexit
planning Stephen Hammond.
"We are working extremely closely with industry to make sure there
are significant supplies of these drugs in the UK," Hammond wrote in
an article last week.
But some Britons do not share that confidence, and anecdotal
evidence from newspaper readers suggests people are stockpiling
everything from children's painkillers to medicines for serious
conditions.
For Elgarf, a member of anti-Brexit Facebook group "48 per cent
Preppers" - a reference to the percentage that voted to remain in
the EU in the 2016 referendum - that is not an option, and that has
left her fearful.
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"It doesn’t matter even if I had all the money in the world, I can’t
go and buy these medicines because they are prescription-only. I
have no way of securing my child’s future," she said.
It is not just patients and their families who are concerned.
The chief executive of a body running hospitals in Birmingham,
England's second-biggest city, warned last week there was a risk
operations could be canceled because of a drug shortage.
"In the event of a chaotic, no-deal exit, many NHS trusts could
quickly run out of vital medical supplies," Dr Dave Rosser wrote in
a memo to his board of directors.
He said "well-informed and non-political NHS sources" had estimated
goods from Europe across the English Channel "could be reduced to
between one-third and one-fifth of current daily volumes for a
period of at least some months."
According to the Brexit Health Alliance, an industry body, 45
million patient packs go to the EU from the UK every month, and 37
million packs go the other way.
"Any divergence from these harmonized standards by the UK in the
future, and a lack of agreement on cooperation with the EU on
medicines and medical devices, would mean that supply chains are at
risk," it said.
One unintended consequence of the concern is that patients stocking
up on medicines might bring about problems themselves.
"Hospitals, pharmacies, (family doctor) surgeries and patients
should not stockpile medicines at any point during this process,"
health minister Hammond said.
"Doing so risks shortages for other patients. If everyone does what
they are supposed to, we are confident the supply of medicines will
continue uninterrupted whatever the Brexit outcome."
(Writing by Michael Holden; editing by John Stonestreet)
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