A person with type 1 diabetes incurred annual insulin costs of
$5,705, on average, in 2016. The average cost was roughly half that
at $2,864 per patient in 2012, according to a report due to be
released on Tuesday by the nonprofit Health Care Cost Institute (HCCI).
The figures represent the combined amount paid by a patient and
their health plan for the medicine and do not reflect rebates paid
at a later date.
The increasing cost of insulin has led some patients to put their
own health at risk.
In recent months, anecdotal stories have cropped up from family
members and patients describing the rationing of the life-saving
medication because they could not afford out-of-pocket expenses for
insulin. That has also led to some protests outside company
headquarters of insulin makers.
HCCI said the jump in spending was driven primarily by higher
insulin prices overall and, to a lesser extent, a shift toward more
expensive insulin products. Average daily insulin use rose only 3
percent over the same five-year period, the report found.
"It's not that individuals are using more insulin or that new
products are particularly innovative or provide immense benefits,"
Jeannie Fuglesten Biniek, a senior researcher at HCCI and the
report's co-author said in a phone interview.
"Use is pretty flat, and the price changes are occurring in both
older and newer products. That surprised me. The exact same products
are costing double," she said.
Drugmakers say they periodically need to raise U.S. list prices of
their medications to help offset steep rebates they must offer to
get them covered by insurance plans. In the last two years, major
pharmaceutical makers have limited annual price hikes of
prescription medicines under growing pressure from the
administration of U.S. President Donald Trump and Congress.
GRAPHIC: The cost burden of insulin - https://tmsnrt.rs/2Hsrld0
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HCCI, based in Washington, D.C., tracks insurance claims data on
about 80 million people, drawing on information from the
government's Medicare health plan for Americans aged 65 and older
and four of the industry's largest health insurers: UnitedHealth
Group, Aetna, now owned by CVS Health Corp, Humana Inc and Kaiser
Permanente.
The insulin report analyzed commercial claims data for about 15,000
patients with type 1 diabetes annually who had at least one
prescription for an insulin product during the year.
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From 2012 to 2016, the average price of insulin increased from 13
cents per unit to 25 cents per unit, according to the report. For
the average patient using 60 units per day, the daily cost went from
$7.80 in 2012 to $15 in 2016.
The findings come amid new outrage over the cost of prescription
drugs in the United States, the highest in the world.
This month, Democratic lawmakers introduced legislation aimed at
lowering prescription medicine costs for consumers and sent letters
to 12 drugmakers seeking information on price hikes. They included
the top three insulin manufacturers - Indianapolis-based Eli Lilly
and Co, Danish drugmaker Novo Nordisk A/S and France's Sanofi SA.
In October, the Minnesota attorney general sued the three main
insulin makers and accused them of deceptively raising prices. A
similar proposed class action lawsuit on behalf of patients is
pending in New Jersey federal court.
"Different actors want to make an example of insulin now and how its
cost is a huge barrier for millions of patients," said Rachel Sachs,
an associate law professor at Washington University in St. Louis.
So far in 2019, Sanofi raised prices on some insulin products
between 4.4 percent and 5.2 percent, while Novo Nordisk raised
prices on some of its insulins by 4.9 percent. As of Jan. 17, Lilly
had not raised prices on its insulins.
Sanofi and Novo Nordisk said they could not comment until they have
seen the full report. Lilly did not immediately respond to a request
for comment.
About 1.2 million Americans have type 1 diabetes, a chronic
condition in which the pancreas stops producing insulin. Type 2
diabetes, a growing problem linked to the obesity epidemic, is far
more common, affecting nearly 30 million people in the United
States, according to the American Diabetes Association. While type 2
diabetes is treated with a variety of other medicines, those
patients may also eventually become dependent on insulin as the
disease progresses.
(Reporting by Robin Respaut in San Francisco and Chad Terhune in Los
Angeles; Additional reporting by Michael Erman in New York; editing
by Bill Berkrot)
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