Patients go without needed treatment after the government shutdown
disrupts a telehealth program
[October 31, 2025]
By ALI SWENSON and OBED LAMY
MINOOKA, Ill. (AP) — Bill Swick has a rare degenerative brain disease
that inhibits his mobility and speech. Instead of the hassle of
traveling an hour to a clinic in downtown Chicago to visit a speech
therapist, he has benefited from virtual appointments from the comfort
of his home.
But Swick, 53, hasn’t had access to those appointments for the last
month.
The federal government shutdown, now in its fifth week, halted funding
for the Medicare telehealth program that pays his provider for her
services. So, Swick and his wife are practicing old strategies rather
than learning new skills to manage his growing difficulties with
processing language, connecting words and pacing himself while speaking.
“It’s frustrating because we want to continue with his journey, with his
progress,” 45-year-old Martha Swick, a caregiver for her husband since
his diagnosis three years ago, said during an interview at their home in
Minooka, Illinois. “I try to have all his therapy and everything
organized for him, to make his day easier and smoother, and then
everything has a hitch, and we have to stop and wait.”
Their experience has become common in recent weeks among the millions of
patients with Medicare fee-for-service plans who count on pandemic-era
telehealth waivers to attend medical appointments from home.
With Congress unable to agree on a deal to fund the government, the
waivers have lapsed, even with support from Republicans and Democrats.
As a result, medical providers are deciding whether they can continue
offering telehealth services without the guarantee of reimbursement or
whether they need to halt virtual visits altogether.
That’s left a patient population of mostly older adults with fewer
options to seek specialists or get help when they can’t physically
travel far from home.
Swick, whose corticobasal degeneration causes symptoms similar to
Parkinson's disease, can’t feed or dress himself anymore and struggles
with balance and walking. Add on the logistical nightmare of driving to
the city in traffic, and in-person speech therapy appointments aren’t a
worthwhile ordeal for him and his wife.
But missing even a few appointments can impede progress for patients
with dementia and other degenerative conditions who depend on continuity
of care, experts said.
It “feels like you’re taking a step back,” Swick said in the interview.
A temporary pause, with significant impact
Before the COVID-19 pandemic, Medicare only paid for virtual medical
appointments under narrow circumstances, including in designated rural
areas and when patients logged in from eligible sites, like hospitals
and clinics.
That changed in 2020, when Trump’s first administration dramatically
expanded telehealth coverage in response to the public health emergency.
Medicare started reimbursing a wide range of telehealth visits,
stripping the geographic requirement, and allowing patients to take
calls from their homes.
Congress has routinely extended the telehealth flexibilities and was
poised to do so again before their Sept. 30 expiration. But when budget
negotiations stalled and the government shut down Oct. 1, the vote never
happened, leaving the program temporarily unfunded.
With more than 4 million Medicare fee-for-service beneficiaries using
telehealth in the first half of 2025, according to Brown University’s
School of Public Health, the pause has had a major impact on an already
vulnerable population.
Swick’s speech therapy services are provided by the Chicago-area
business Memory and Aphasia Care. Owner Becky Khayum said many of her
clients are in different cities and states and sought her therapists out
because they specialize in frontal temporal dementias.
“Now suddenly without telehealth services, they do not continue to have
the support to participate in those activities that are so important to
them,” Khayum said. “The risk is we could see social withdrawal; we
could see depression and anxiety increased.”
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Martha Swick, left, and her husband Bill Swick look at each other at
their home in Minooka, Ill., Friday, Oct. 24, 2025. (AP Photo/Nam Y.
Huh)
 Virtual visits can also be useful in
different areas of medicine. Dr. Faraz Ghoddusi, a family medicine
provider in Tigard, Oregon, said he uses telehealth to check in and
help his patients manage their conditions, like diabetes and chronic
lung disease. He said that in the current Medicare telehealth pause,
one of his patients wasn’t having regular check-ins and ended up in
the emergency room.
Susan Collins, 73, in Murrieta, California, said
Medicare-reimbursed telehealth appointments were a “tremendous
relief” to her when she was a full-time caregiver for her late
husband, Leo. Before he died last year from progressive supranuclear
palsy, a rare brain disorder, she struggled to lift him from his
wheelchair in and out of the car for his in-person doctor visits 60
miles from their home.
“He was much safer at home,” Collins said, noting that telehealth
was a useful resource when her husband needed a medication or
symptom consultation but not a complete physical exam.
Doctors respond differently, leaving a patchwork
The latest guidance from the Centers for Medicare and Medicaid
Services does not ban medical providers from providing telehealth
services during the lapse – but it stops short of promising they’ll
be reimbursed if they do.
In response, providers are deciding whether they can absorb the risk
of continuing care without assurance that they’ll be paid for it
when the government reopens.
Khayum in Illinois said she had to stop providing telehealth
services to Medicare patients because her small business couldn’t
handle the volatility of potentially losing out on payments.
Ghoddusi, the family medicine provider, said his Oregon practice is
honoring telehealth appointments made before Oct. 1 but not
scheduling additional ones for Medicare patients until the funding
is restored.
Genevieve Richardson, owner of a speech pathology business in
Austin, Texas, has stopped providing telehealth services to her
Medicare clients who are spread across the country. She has been
referring them to outpatient clinics in their areas who can provide
stopgap services in person.
Major hospitals are also grappling with whether to provide virtual
care to Medicare patients. Dr. Helen Hughes, medical director of the
Office of Telemedicine at Johns Hopkins Medicine, said the hospital
initially continued the care, but paused scheduling more Medicare
telehealth visits as of Oct. 16 as the shutdown continued.
She said the uncertainty surrounding the waivers has been “a total
roller coaster.”
The congressional stalemate persists
The government shutdown is in its fifth week with no clear end on
the horizon. Meanwhile, Medicare telehealth flexibilities and a
separate Medicare program offering patients hospital-level care at
home both remain paused.
Mei Kwong, executive director of the Center for Connected Health
Policy, said the simplest solution to renewing the telehealth
waivers would be for Congress to vote separately on them.
The hands of federal health care administrators “are kind of tied,”
she said. “So, you really do need Congress to act.”
But with lawmakers divided and looking for leverage, hopes for such
action are low.
Martha Swick, practicing word exercises with her husband in their
home on a recent morning, said if a solution isn’t found soon, “my
resource collection is going to run out.”
“I’m just doing what I’m able to at home as a wife and a caregiver,”
she said. “But eventually I’m really going to need those
appointments to come back.”
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Swenson reported from New York.
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